The Arc of the United States
2000 Pennsylvania Avenue NW,
Suite 500
Washington, DC, USA
800-433-5255
About The Arc of the United States
The Arc of the United States is a national nonprofit advocating for and supporting people with intellectual and developmental disabilities (IDD) and their families. Many people with IDD have rare genetic conditions, developmental disabilities, or lifelong support needs, and The Arc works to ensure they have the rights, services, and opportunities they need to live fully in the community.
Founded in 1950 by parents who wanted better lives for their children with disabilities, The Arc promotes and protects the human and civil rights of people with IDD. Its work includes public policy advocacy, legal advocacy, grassroots advocacy, public education, and programs focused on education, healthcare, future planning, criminal justice, technology, travel, and community inclusion.
The Arc provides resources, fact sheets, and plain-language tools for people with disabilities, families, educators, service providers, healthcare professionals, and advocates. The Arc’s national office is based in Washington, DC, and works alongside a nationwide network of state and local chapters that provide services, support, and advocacy in communities across the United States.
Related Rare Diseases:
- Phelan-McDermid Syndrome
- Cerebral Folate Deficiency
- Apert Syndrome
- ADNP Syndrome
- COL4A1/A2-Related Disorders
- SETBP1 Haploinsufficiency Disorder
- KAT6A Syndrome
- Pitt-Hopkins Syndrome
- NGLY1 Deficiency
- Succinic Semialdehyde Dehydrogenase Deficiency
- Fountain Syndrome
- Tay Sachs Disease
- Classic Infantile CLN1 Disease
- Warburg Micro Syndrome
- KCNK9 Imprinting Syndrome
- Cohen Syndrome
- Sepiapterin Reductase Deficiency
- ATR-16 Syndrome
- MECP2 Duplication Syndrome
- Congenital Generalized Lipodystrophy
- Congenital Disorders of Glycosylation
- Sporadic Porencephaly
- Brain Small Vessel Disease 1 With or Without Ocular Anomalies
- Lysosomal Free Sialic Acid Storage Disorders
- Wolman Disease
- Triosephosphate Isomerase Deficiency
- Alpha Thalassemia X-linked Intellectual Disability Syndrome
- Megalencephaly-Capillary Malformation
- Lysosomal Storage Disorders
- Megalocornea Intellectual Disability Syndrome
- Fucosidosis
- Costello Syndrome
- MCT8-Specific Thyroid Hormone Cell Transporter Deficiency
- Turner-Type X-Linked Syndromic Intellectual Developmental Disorder
- Laband Syndrome
- Nance-Horan Syndrome
- Trisomy 9p (Multiple Variants)
- KBG Syndrome
- Schindler disease
- Alternating Hemiplegia of Childhood
- Bannayan-Riley-Ruvalcaba Syndrome
- Cutis Marmorata Telangiectatica Congenita
- Mosaic Trisomy 22
- Filippi Syndrome
- Ring Chromosome 4
- Hypomelanosis of Ito
- Smith-Magenis Syndrome
- Schinzel Giedion Syndrome
- Chromosome 15 Ring
- Chromosome 18q- Syndrome
- Chromosome 18 Ring
- Chromosome 9 Ring
- Fetal Hydantoin Syndrome
- Chromosome 22 Ring
- Chromosome 6 Ring
- Kabuki Syndrome
- Cardiofaciocutaneous Syndrome
- Dyggve Melchior Clausen syndrome
- Marinesco-Sjögren Syndrome
- Börjeson-Forssman-Lehman Syndrome
- Penta X Syndrome
- Carpenter Syndrome
- Fragile X Syndrome
- X-linked Opitz G/BBB Syndrome
- Hyperprolinemia Type II
- Sjögren-Larsson Syndrome
- CHARGE Syndrome
- Meningitis
- Oral-Facial-Digital Syndrome
- Isolated Aniridia
- Glutathione Synthetase Deficiency
- AIDS Dysmorphic Syndrome
- Pallister Killian Mosaic Syndrome
- Cerebrocostomandibular Syndrome
- Optic Nerve Hypoplasia
- Seckel Syndrome
- Homocystinuria due to Cystathionine Beta-Synthase Deficiency
- Rubinstein-Taybi Syndrome
- Tetrahydrobiopterin Deficiency
- Coffin Lowry Syndrome
- Alpha-Mannosidosis
- Rasmussen Encephalitis
- Pyruvate Dehydrogenase Complex Deficiency
- Angelman Syndrome
- Leigh Syndrome
- Leprechaunism
- Leukodystrophy
- Russell-Silver Syndrome
- Hydranencephaly
- Zellweger Spectrum Disorders
- Agenesis of Corpus Callosum
- Hartnup Disease
- Fetal Alcohol Syndrome
- Xeroderma Pigmentosum
- Saethre Chotzen Syndrome
- Arginase-1 Deficiency
- Sturge Weber Syndrome
- I Cell Disease
- Pseudo Hurler Polydystrophy
- Sialidosis
- Williams Syndrome
- Smith-Lemli-Opitz Syndrome
- Mucopolysaccharidosis Type III
- Mucopolysaccharidosis Type I
- Rubella
- Sotos Syndrome
- Toxoplasmosis
- Juvenile CLN3 Disease
- Lesch Nyhan Syndrome
- Retinopathy of Prematurity
- Trisomy 13 Syndrome
- Dubowitz Syndrome
- Rett Syndrome
- Pantothenate Kinase-Associated Neurodegeneration
- Coffin-Siris Syndrome
- Carnosinemia
- Froehlich Syndrome
- Aicardi Syndrome
- Tuberous Sclerosis
- Cornelia de Lange Syndrome
- Joubert Syndrome
- Cri du Chat Syndrome
- Hydrocephalus
- KAT6B-Related Disorders
- Síndrome de Angelman
- Síndrome de anomalías congénitas múltiples asociado al gen KAT6B
- Trastornos congénitos de la glicosilación (2021)
- Síndrome de Phelan-McDermid
- Sindrome de Sotos
- Síndrome de alfa talasemia-discapacidad intelectual ligada al cromosoma X
- Síndrome de Russell-Silver
- Síndrome de Kabuki
- Esclerosis tuberosa
- Encefalitis de Rasmussen
- Deficiencia de Arginasa-1
- Síndrome de Cohen
- Leucodistrofia
- Froelich Syndrome
- Trisomía 22 en mosaico
- Deficiencia de tetrahidrobiopterina
- Síndrome KAT6A
- Deficiencia del transportador de células de hormona tiroidea específica de MCT8
- Síndrome de Coffin Siris
- Síndrome de Williams
- Síndrome de Opitz G/BBB ligado al cromosoma X
- Lipodistrofia generalizada congénita
- Enfermedad de Tay Sachs
- Deficiencia de NGLY1
- Síndrome orofaciodigital
- Microsíndrome de Warburg
- Síndrome de Smith-Lemli-Opitz
- Imagawa-Matsumoto Syndrome
- Pentasomía X
- Síndrome de Apert
- Síndrome del cromosoma 22q en anillo
- Trastorno del desarrollo intelectual sindrómico ligado al cromosoma X tipo Turner
- Mucopolisacaridosis tipo III
- Síndrome de Imagawa-Matsumoto
- Síndrome de megalencefalia-malformación capilar
- DNM1-Related Epilepsy and Neurodevelopmental Disorder
- TRPM3-Related Neurodevelopmental Disorder
- GM3 Synthase Deficiency
- GRIN-related Disorders
- Fetal Carbamazepine Syndrome
