Vaincre Les Maladies Lysosomales
About Vaincre Les Maladies Lysosomales
The Vaincre Les Maladies Lysosomales (VLML) is a voluntary, non-profit organization in France dedicated to providing information and support to individuals with lysosomal disorders and their families; improving the quality of life of affected individuals; and promoting and supporting research for these disorders (e.g., Pompe disease, the lipidoses, mucolipidoses, mucopolysaccharidoses, and glycoproteinoses). Established in 1990, Vaincre Les Maladies Lysosomales provides referrals to appropriate support groups; promotes public awareness campaigns; and offers informational conferences and weekend retreats for affected individuals, families, and healthcare professionals. Vaincre Les Maladies Lysosomales also offers a variety of educational materials to affected individuals, family members, and health care professionals including regular newsletters, brochures, books, and videos.
Related Rare Diseases:
- Mucopolysaccharidosis Type I
- Tay Sachs Disease
- Pycnodysostosis
- Acid Sphingomyelinase Deficiency
- Lysosomal Free Sialic Acid Storage Disorders
- Wolman Disease
- Lysosomal Storage Disorders
- Fucosidosis
- Classic Infantile CLN1 Disease
- PMM2-CDG
- Schindler disease
- Multiple Sulfatase Deficiency
- Alpha-Mannosidosis
- Pompe Disease
- Glycogen Storage Disease Type 7
- Glycogen Storage Disease Type V
- I Cell Disease
- Pseudo Hurler Polydystrophy
- Sialidosis
- Mucopolysaccharidosis IV
- Mucopolysaccharidosis Type VII
- Mucopolysaccharidosis Type III
- Maroteaux Lamy Syndrome
- Niemann Pick Disease Type C
- Cystinosis
- Gaucher Disease
- Enfermedad de Pompe
- Mucopolisacaridosis IV
- Enfermedad de Tay Sachs
- Mucopolisacaridosis tipo III
- Cistinosis
