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Home / Patient Organizations / Patient Organizations
Iron Disorders Institute
Teléfono: 864-292-1175 Correo electrónico: [email protected] Fax: 864-292-1878
Enfermedades raras relacionadas: African Iron Overload, Aceruloplasminemia, Atransferrinemia, ...
https://rarediseases.org/es/organizations/iron-disorders-institute/
Ver perfil >
Irritable Bowel Information & Support Association of Australia, Inc.
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/irritable-bowel-information-support-association-of-australia-inc/
Ver perfil >
Isacra
https://rarediseases.org/es/organizations/isacra/
Ver perfil >
iSEEK Pulmonary Hypertension Hope Center
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hipertensión arterial pulmonar
https://rarediseases.org/es/organizations/iseek-pulmonary-hypertension-hope-center/
Ver perfil >
Israeli Huntington Disease Association
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Huntington’s Disease
https://rarediseases.org/es/organizations/israeli-huntington-disease-association/
Ver perfil >
ITP Foundation
Teléfono: 203-655-6954 Correo electrónico: [email protected] Fax: 203-548-9182
https://rarediseases.org/es/organizations/itp-foundation/
Ver perfil >
ITP Support Association
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Trombocitopenia inmune
https://rarediseases.org/es/organizations/itp-support-association/
Ver perfil >
Jack Bear Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/jack-bear-foundation/
Ver perfil >
Jack McGovern Coats’ Disease Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Coats Disease
https://rarediseases.org/es/organizations/jack-mcgovern-coats-disease-foundation/
Ver perfil >
Jack’s Tomorrow, Inc.
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/jacks-tomorrow-inc/
Ver perfil >
Jain Foundation Inc.
Teléfono: 425-882-1492 Correo electrónico: [email protected] Fax: 240-282-0510
Enfermedades raras relacionadas: Distal Myopathy, Limb-Girdle Muscular Dystrophies
https://rarediseases.org/es/organizations/jain-foundation-inc/
Ver perfil >
Jamal’s Helping Hands, Inc.
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/jamals-helping-hands-inc/
Ver perfil >
Jamal’s Helping Hands
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/jamals-helping-hands/
Ver perfil >
Janine Sarcoidosis Outreach Foundation
Teléfono: 832-248-6621 Correo electrónico: [email protected] Fax: 281-568-5775
Enfermedades raras relacionadas: Sarcoidosis
https://rarediseases.org/es/organizations/janine-sarcoidosis-outreach-foundation/
Ver perfil >
Jansen’s Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Jansen Type Metaphyseal Chondrodysplasia
https://rarediseases.org/es/organizations/jansens-foundation/
Ver perfil >
Jared’s Juggernaut, Inc.
Enfermedades raras relacionadas: Blastoma pleuropulmonar
https://rarediseases.org/es/organizations/jareds-juggernaut-inc/
Ver perfil >
Jefferson University Medical School
Teléfono: 215-955-6161 Correo electrónico: [email protected] Fax: 215-923-5507
https://rarediseases.org/es/organizations/jefferson-university-medical-school/
Ver perfil >
Jeffrey Modell Foundation
Teléfono: 212-819-0200 Correo electrónico: [email protected] Fax: 212-764-4180
Enfermedades raras relacionadas: Complete DiGeorge Syndrome, Atimia congénita, Leukocyte Adhesion Deficiency Syndromes, ...
https://rarediseases.org/es/organizations/jeffrey-modell-foundation/
Ver perfil >
Job Accommodation Network
Teléfono: 304-293-7186 Correo electrónico: [email protected] Fax: 304-293-5407
https://rarediseases.org/es/organizations/job-accommodation-network/
Ver perfil >
John Douglas French Alzheimer’s Foundation
Teléfono: 310-445-4650 Correo electrónico: [email protected] Fax: 310-479-0516
Enfermedades raras relacionadas: Alzheimer’s Disease
https://rarediseases.org/es/organizations/john-douglas-french-alzheimers-foundation/
Ver perfil >
John Tracy Clinic for Preschool Deaf Children
Teléfono: 213-748-5481 Correo electrónico: jtc.org Fax: 213-749-1651
https://rarediseases.org/es/organizations/john-tracy-clinic-for-preschool-deaf-children/
Ver perfil >
Johns Hopkins Hereditary Colorectal Cancer Registry
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Turcot Syndrome, Familial Adenomatous Polyposis
https://rarediseases.org/es/organizations/johns-hopkins-hereditary-colorectal-cancer-registry/
Ver perfil >
Jonahs Just Begun – Foundation to Cure Sanfilippo, Inc.
Teléfono: 347-689-2186 Correo electrónico: [email protected] Fax: 347-710-3136
Enfermedades raras relacionadas: Mucopolisacaridosis tipo III
https://rarediseases.org/es/organizations/jonahs-just-begun-foundation-to-cure-sanfilippo-inc/
Ver perfil >
Joshua Frase Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Congenital Myopathy, Centronuclear Myopathy, X-Linked Myotubular Myopathy ...
https://rarediseases.org/es/organizations/joshua-frase-foundation/
Ver perfil >
Joshua’s Cure
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/joshuas-cure/
Ver perfil >
Joubert Syndrome and Related Disorders Foundation
Teléfono: 614-864-1362 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Joubert Syndrome
https://rarediseases.org/es/organizations/joubert-syndrome-and-related-disorders-foundation/
Ver perfil >
Jsrdf
https://rarediseases.org/es/organizations/jsrdf/
Ver perfil >
Juju and Friends CLN2 Warrior Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/juju-and-friends-cln2-warrior-foundation/
Ver perfil >
Julia’s Wings Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/julias-wings-foundation/
Ver perfil >
Just One More Day for Love, Hope & a Cure
Teléfono: 321-698-8538 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/just-one-more-day-for-love-hope-a-cure/
Ver perfil >
Juvenile Dermatomyositis Registry at Children’s Memorial Hospital
Teléfono: 773-880-4360 Correo electrónico: [email protected] Fax: 773-880-4179
https://rarediseases.org/es/organizations/juvenile-dermatomyositis-registry-at-childrens-memorial-hospital/
Ver perfil >
Juvenile Diabetes Foundation Australia
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/juvenile-diabetes-foundation-australia/
Ver perfil >
Juvenile Diabetes Research Foundation
Teléfono: 647-789-2000 Correo electrónico: [email protected] Fax: 416-491-2111
https://rarediseases.org/es/organizations/juvenile-diabetes-research-foundation/
Ver perfil >
Juvenile Diabetes Research Foundation International
Teléfono: 212-785-9595 Correo electrónico: [email protected] Fax: 212-785-2873
https://rarediseases.org/es/organizations/juvenile-diabetes-research-foundation-international/
Ver perfil >
K-T Support Group (Klippel Trenaunay)
Miembro NORD
Teléfono: 513-722-7724 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Klippel-Trenaunay Syndrome
https://rarediseases.org/es/organizations/k-t-support-group-klippel-trenaunay/
Ver perfil >
Kallmann syndrome & CHH patient group
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/kallmann-syndrome-chh-patient-group/
Ver perfil >
KARES Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Trastorno del Neurodesarrollo Relacionado con KDM5C
https://rarediseases.org/es/organizations/kares-foundation-inc/
Ver perfil >
KAT6 Foundation
Miembro NORD
Teléfono: 845-282-4979 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de anomalías congénitas múltiples asociado al gen KAT6B, Síndrome KAT6A
https://rarediseases.org/es/organizations/kat6-foundation/
Ver perfil >
Kaya Girl Legacy
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/kaya-girl-legacy/
Ver perfil >
KBG Foundation Inc
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de KBG
https://rarediseases.org/es/organizations/kbg-foundation-inc/
Ver perfil >
KBG Syndrome Association
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/kbg-syndrome-association/
Ver perfil >
KCNB1.org
Enfermedades raras relacionadas: Encefalopatía por KCNB1
https://rarediseases.org/es/organizations/kcnb1-org/
Ver perfil >
KCNQ2 CURE Alliance
Enfermedades raras relacionadas: KCNQ2 Developmental and Epileptic Encephalopathy
https://rarediseases.org/es/organizations/kcnq2-cure-alliance-2/
Ver perfil >
KCNQ2 Cure Alliance
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/kcnq2-cure-alliance/
Ver perfil >
Kcnt1 Epilepsy Foundation
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/kcnt1-epilepsy-foundation-2/
Ver perfil >
KCNT1 Epilepsy Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/kcnt1-epilepsy-foundation/
Ver perfil >
KCNT1 Slack Epilepsy Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/kcnt1-slack-epilepsy-foundation/
Ver perfil >
Kennedy Institute of Ethics
Teléfono: 202-687-8089 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/kennedy-institute-of-ethics/
Ver perfil >
Kennedy Krieger Institute
Teléfono: 443-923-9200 Correo electrónico: [email protected] Fax: 443-923-9405
Enfermedades raras relacionadas: Canavan Disease, X-Linked Adrenoleukodystrophy, Leucodistrofia ...
https://rarediseases.org/es/organizations/kennedy-krieger-institute/
Ver perfil >
Kennedy’s Disease Association
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad de Kennedy
https://rarediseases.org/es/organizations/kennedys-disease-association/
Ver perfil >
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