Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Limb-Girdle Muscular Dystrophies
https://rarediseases.org/es/organizations/lgmd-awareness-foundation/
Enfermedades raras relacionadas:
Limb-Girdle Muscular Dystrophies
https://rarediseases.org/es/organizations/lgmd-1d-dnajb6-foundation-and-international-registry/
Enfermedades raras relacionadas:
Limb-Girdle Muscular Dystrophies
https://rarediseases.org/es/organizations/lgmd2i-research-fund/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lhon-collective/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Li-Fraumeni Syndrome, Síndrome de Li-Fraumeni
https://rarediseases.org/es/organizations/li-fraumeni-syndrome-association/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/liams-land-organization-inc/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lichen-planus-hq/
Miembro NORD
Teléfono:
217-207-3291
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Lichen Planus, Lichen Sclerosus
https://rarediseases.org/es/organizations/lichen-sclerosus-support-network/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Tenosynovial Giant Cell Tumor, Gastrointestinal Stromal Tumors, Tumor tenosinovial de células gigantes, ...
https://rarediseases.org/es/organizations/life-raft-group/
Teléfono:
412-471-2600
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lifeswork/
Enfermedades raras relacionadas:
Weill-Marchesani Syndrome, Aicardi Syndrome
https://rarediseases.org/es/organizations/lighthouse-international/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lilabean-foundation-for-pediatric-brain-cancer-research/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
lipodystrophy due to peptidic growth factors deficiency, Berardinelli-Seip congenital lipodystrophy, acquired generalized lipodystrophy, ...
https://rarediseases.org/es/organizations/lipodystrophy-united/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lipodystrophy-united-2/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lipoprotein-a-foundation/
Enfermedades raras relacionadas:
ADNP Syndrome, KAT6A Syndrome, PHACE Syndrome, ...
https://rarediseases.org/es/organizations/little-hearts-inc/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/little-miss-hannah-foundation/
Enfermedades raras relacionadas:
Asphyxiating Thoracic Dystrophy, Pycnodysostosis, Hallermann-Streiff Syndrome, ...
https://rarediseases.org/es/organizations/little-people-of-america-inc/
Enfermedades raras relacionadas:
Multicentric Osteolysis Nodulosis and Arthropathy Spectrum, Espectro osteólisis multicéntrica-nodulosis-artropatía
https://rarediseases.org/es/organizations/little-people-uk/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Wolf-Hirschhorn Syndrome
https://rarediseases.org/es/organizations/liv4thecure/
Teléfono:
512-236-8820
Fax: 512-236-8482
Enfermedades raras relacionadas:
Acute Promyelocytic Leukemia, Primary Central Nervous System Lymphoma, Meningioma, ...
https://rarediseases.org/es/organizations/livestrong-foundation/
Teléfono:
610-645-4567
Fax: 610-645-4573
Enfermedades raras relacionadas:
Hereditary Breast and Ovarian Cancer Syndrome
https://rarediseases.org/es/organizations/living-beyond-breast-cancer/
Teléfono:
518-218-0000
Fax: 518-862-2175
https://rarediseases.org/es/organizations/living-resources/
Teléfono:
619-993-3812
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
47, XXY (Klinefelter Syndrome), Síndrome de Klinefelter (47,XXY) y otras variantes
https://rarediseases.org/es/organizations/living-with-xxy/
Enfermedades raras relacionadas:
Monilethrix, Graft versus Host Disease, Trichotillomania, ...
https://rarediseases.org/es/organizations/locks-of-love/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Loeys-Dietz Syndrome
https://rarediseases.org/es/organizations/loey-dietz-syndrome-foundation/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Oculocerebrorenal syndrome
https://rarediseases.org/es/organizations/lowe-syndrome-association-inc/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Pediatric Non-Small Cell Lung Cancer, Small Cell Lung Cancer
https://rarediseases.org/es/organizations/lung-association/
Enfermedades raras relacionadas:
Pediatric Non-Small Cell Lung Cancer, Small Cell Lung Cancer
https://rarediseases.org/es/organizations/lung-cancer-alliance/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lung-foundation-australia/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Idiopathic Pulmonary Fibrosis, Cystic Fibrosis, Fibrosis quística ...
https://rarediseases.org/es/organizations/lung-transplant-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lungevity-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lupus-and-allied-diseases-association-inc/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Neonatal Lupus, Lupus
https://rarediseases.org/es/organizations/lupus-canada/
Enfermedades raras relacionadas:
Asherson’s Syndrome, Neonatal Lupus, Antiphospholipid Syndrome, ...
https://rarediseases.org/es/organizations/lupus-foundation-of-america-inc/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lupus-research-alliance/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Scleroderma, Lupus, Sjögren Syndrome ...
https://rarediseases.org/es/organizations/lupus-society-of-alberta/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lymedisease-org/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Diffuse Pulmonary Lymphangiomatosis, Lymphedema-Distichiasis Syndrome, Congenital Pulmonary Lymphangiectasia, ...
https://rarediseases.org/es/organizations/lymphatic-education-research-network/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Diffuse Pulmonary Lymphangiomatosis, Gorham-Stout Disease, Lymphangioleiomyomatosis ...
https://rarediseases.org/es/organizations/lymphatic-malformation-institute/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Diffuse Pulmonary Lymphangiomatosis, Gorham-Stout Disease, Lymphatic Malformations ...
https://rarediseases.org/es/organizations/lymphangiomatosis-gorhams-disease-alliance-lgda/
Teléfono:
435-374-5245
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/lymphedema-clinic-wittlinger-therapy-center/
