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Home / Patient Organizations / Patient Organizations
M-CM Network
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de sobrecrecimiento asociado al gen PIK3CA, Síndrome de megalencefalia-malformación capilar
https://rarediseases.org/es/organizations/m-cm-network/
Ver perfil >
M. D. Anderson Cancer Center Hereditary Colorectal Cancer Registry
Teléfono: 713-792-3245 Correo electrónico: [email protected] Fax: 713-745-1163
Enfermedades raras relacionadas: Familial Adenomatous Polyposis
https://rarediseases.org/es/organizations/m-d-anderson-cancer-center-hereditary-colorectal-cancer-registry/
Ver perfil >
M.O.R.G.A.N. Project
Teléfono: 321-506-2707 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/m-o-r-g-a-n-project/
Ver perfil >
MAB Community Services
Teléfono: 617-738-5110 Correo electrónico: [email protected] Fax: 617-738-1247
https://rarediseases.org/es/organizations/mab-community-services/
Ver perfil >
Mackenzie’s Mission
Enfermedades raras relacionadas: Amiloidosis
https://rarediseases.org/es/organizations/mackenzies-mission/
Ver perfil >
Macular Disease Society
Teléfono: 126-435-0551 Correo electrónico: [email protected] Fax: 126-435-0558
Enfermedades raras relacionadas: Macular Degeneration
https://rarediseases.org/es/organizations/macular-disease-society/
Ver perfil >
Maddie’s Spark Foundation Inc
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/maddies-spark-foundation-inc/
Ver perfil >
Madison Institute of Medicine(No longer in business)
Teléfono: 608-827-2470 Correo electrónico: [email protected] Fax: 608-827-2444
https://rarediseases.org/es/organizations/madison-institute-of-medicineno-longer-in-business/
Ver perfil >
Magazine for Families with Members Having Special Needs
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/magazine-for-families-with-members-having-special-needs/
Ver perfil >
MAGIC Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Ellis-Van Creveld, Síndrome Cerebro-Pulmón-Tiroides, Pseudoacondroplasia, ...
https://rarediseases.org/es/organizations/magic-foundation/
Ver perfil >
Mainstream, Inc.
Teléfono: 785-266-6422 Correo electrónico: [email protected] Fax: 785-266-2113
https://rarediseases.org/es/organizations/mainstream-inc/
Ver perfil >
Make Early Diagnosis To Prevent Early Death
Teléfono: 801-581-3888 Correo electrónico: [email protected] Fax: 801-581-5402
https://rarediseases.org/es/organizations/make-early-diagnosis-to-prevent-early-death/
Ver perfil >
Make-A-Wish Foundation of America
Teléfono: 602-279-9474 Correo electrónico: [email protected] Fax: 602-279-0855
https://rarediseases.org/es/organizations/make-a-wish-foundation-of-america/
Ver perfil >
Mal de Débarquement Syndrome Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad del desembarco
https://rarediseases.org/es/organizations/mal-de-debarquement-syndrome-foundation/
Ver perfil >
Malan Syndrome Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Malan
https://rarediseases.org/es/organizations/malan-syndrome-foundation/
Ver perfil >
Malignant Hyperthermia Association of the United States
Teléfono: 607-674-7901 Correo electrónico: [email protected] Fax: 607-674-7910
Enfermedades raras relacionadas: Enfermedad central core, Enfermedades relacionadas con el RYR1, Schwartz Jampel Syndrome, ...
https://rarediseases.org/es/organizations/malignant-hyperthermia-association-of-the-united-states/
Ver perfil >
Malignant Hyperthermia Investigation Unit
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Malignant Hyperthermia
https://rarediseases.org/es/organizations/malignant-hyperthermia-investigation-unit/
Ver perfil >
Malro Fighters Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/malro-fighters-foundation/
Ver perfil >
Manitoba Ankylosing Spondylitis Association
Teléfono: 204-256-5320 Correo electrónico: [email protected] Fax: 204-942-4894
https://rarediseases.org/es/organizations/manitoba-ankylosing-spondylitis-association/
Ver perfil >
Mantle Cell Lymphoma Alliance Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/mantle-cell-lymphoma-alliance-foundation/
Ver perfil >
Marbach-Schaaf Neurodevelopmental Syndrome Foundation, Inc.
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/marbach-schaaf-neurodevelopmental-syndrome-foundation-inc/
Ver perfil >
Marc Apodaca Jr Children’s Glioma Cancer Foundation
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/marc-apodaca-jr-childrens-glioma-cancer-foundation/
Ver perfil >
Marc Lustgarten Pancreatic Cancer Foundation (dba The Lustgarten Foundation)
Teléfono: 516-803-2304 Fax: 516-803-2303
https://rarediseases.org/es/organizations/marc-lustgarten-pancreatic-cancer-foundation-dba-the-lustgarten-foundation/
Ver perfil >
March of Dimes
Enfermedades raras relacionadas: Alpha Thalassemia, Bazo Errante, Familial Partial Lipodystrophy, ...
https://rarediseases.org/es/organizations/march-of-dimes/
Ver perfil >
Marinesco-Sjogren Syndrome Support Group
Teléfono: 805-499-7410 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Marinesco-Sjögren Syndrome
https://rarediseases.org/es/organizations/marinesco-sjogren-syndrome-support-group/
Ver perfil >
Mario Negri Institute for Pharmacological Research
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/mario-negri-institute-for-pharmacological-research/
Ver perfil >
Marshall-Smith Syndrome Organization of the USA, Inc.
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Marshall-Smith Syndrome
https://rarediseases.org/es/organizations/marshall-smith-syndrome-organization-of-the-usa-inc/
Ver perfil >
Massachusetts General Department of Anesthesiology
Teléfono: 617-726-3030
https://rarediseases.org/es/organizations/massachusetts-general-department-of-anesthesiology/
Ver perfil >
Massachusetts General Hospital Neurofibromatosis Clinic
Teléfono: 617-724-7856 Correo electrónico: [email protected] Fax: 617-724-8769
Enfermedades raras relacionadas: Neurofibromatosis 1
https://rarediseases.org/es/organizations/massachusetts-general-hospital-neurofibromatosis-clinic/
Ver perfil >
MASSE WORLD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Oculocutaneous Albinism
https://rarediseases.org/es/organizations/masse-world/
Ver perfil >
Mastokids
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Mastocitosis
https://rarediseases.org/es/organizations/mastokids/
Ver perfil >
Maternal Alloimmunization Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad Hemolítica del Feto y del Recién Nacido
https://rarediseases.org/es/organizations/maternal-alloimmunization-foundation/
Ver perfil >
Maternal Pituitary Support
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/maternal-pituitary-support/
Ver perfil >
Matheny School and Hospital
Teléfono: 908-234-0011 Correo electrónico: [email protected] Fax: 908-719-2137
https://rarediseases.org/es/organizations/matheny-school-and-hospital/
Ver perfil >
Mathew Forbes Romer Foundation, Inc.
Teléfono: 561-477-0337 Correo electrónico: [email protected] Fax: 561-477-0077
https://rarediseases.org/es/organizations/mathew-forbes-romer-foundation-inc/
Ver perfil >
Matrix Parent Network and Resource Center
Teléfono: 415-884-3535 Correo electrónico: [email protected] Fax: 415-884-3555
https://rarediseases.org/es/organizations/matrix-parent-network-and-resource-center/
Ver perfil >
Matthew’s Friends
Teléfono: 134-283-6571 Correo electrónico: [email protected] Fax: 788-405-4811
Enfermedades raras relacionadas: Status Epilepticus
https://rarediseases.org/es/organizations/matthews-friends/
Ver perfil >
Mayo Clinic Dept. of Anesthesiology
Teléfono: 507-284-2511 Fax: 507-284-0161
https://rarediseases.org/es/organizations/mayo-clinic-dept-of-anesthesiology/
Ver perfil >
MBTPS1 Related Disorders Research Group
Enfermedades raras relacionadas: Displasia espondiloepifisaria tipo Kondo-Fu
https://rarediseases.org/es/organizations/mbtps1-related-disorders-research-group/
Ver perfil >
MCT8-AHDS Foundation
Enfermedades raras relacionadas: Deficiencia del transportador de células de hormona tiroidea específica de MCT8
https://rarediseases.org/es/organizations/mct8-ahds-foundation/
Ver perfil >
MD Support – The Eyes of the Macular Degeneration Community
Teléfono: 816-761-7080 Correo electrónico: [email protected] Fax: 816-761-7080
Enfermedades raras relacionadas: Coats Disease, Leber Hereditary Optic Neuropathy, Retinoschisis, ...
https://rarediseases.org/es/organizations/md-support-the-eyes-of-the-macular-degeneration-community/
Ver perfil >
MdDS Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/mdds-foundation/
Ver perfil >
MdDS Foundation (Mal de Débarquement Syndrome)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad del desembarco
https://rarediseases.org/es/organizations/mdds-foundation-mal-de-debarquement-syndrome/
Ver perfil >
ME Association
Teléfono: 128-081-8964 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Myalgic Encephalomyelitis
https://rarediseases.org/es/organizations/me-association/
Ver perfil >
ME Research UK
Teléfono: 173-845-1234 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Myalgic Encephalomyelitis
https://rarediseases.org/es/organizations/me-research-uk/
Ver perfil >
MEBO Research
Teléfono: 786-228-6880 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/mebo-research/
Ver perfil >
MECP2 Duplication Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/mecp2-duplication-foundation/
Ver perfil >
MECP2 Duplication UK
Correo electrónico: [email protected]
Enfermedades raras relacionadas: MECP2 Duplication Syndrome
https://rarediseases.org/es/organizations/mecp2-duplication-uk/
Ver perfil >
Med13
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/med13/
Ver perfil >
MED13L Foundation
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/the-med13l-foundation/
Ver perfil >
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