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Home / Patient Organizations / Patient Organizations
Family Resource Centers Network of California
Teléfono: 415-282-7494 Correo electrónico: [email protected] Fax: 415-282-1226
https://rarediseases.org/es/organizations/family-resource-centers-network-of-california/
Ver perfil >
Family Support Center
Teléfono: 732-262-8020 Correo electrónico: [email protected] Fax: 732-262-4373
https://rarediseases.org/es/organizations/family-support-center/
Ver perfil >
Family Support Network of North Carolina
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/family-support-network-of-north-carolina/
Ver perfil >
Family Voices, Inc.
Teléfono: 505-872-4774 Correo electrónico: [email protected] Fax: 505-872-4780
https://rarediseases.org/es/organizations/family-voices-inc/
Ver perfil >
Fanconi Cancer Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Anemia de Fanconi
https://rarediseases.org/es/organizations/fanconi-cancer-foundation/
Ver perfil >
Fanconi Hope
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Anemia de Fanconi
https://rarediseases.org/es/organizations/fanconi-hope/
Ver perfil >
Fat Disorders Resource Society
Miembro NORD
Teléfono: 240-413-3864 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/fat-disorders-resource-society/
Ver perfil >
FCS Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de quilomicronemia familiar
https://rarediseases.org/es/organizations/fcs-foundation/
Ver perfil >
FD/MAS Alliance
Miembro NORD
Teléfono: 603-325-2489 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Fibrous Dysplasia / McCune-Albright Syndrome, McCune-Albright Syndrome
https://rarediseases.org/es/organizations/fd-mas-alliance/
Ver perfil >
Federación Colombiana de Enfermedades Raras
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/federacion-colombiana-de-enfermedades-raras/
Ver perfil >
Federacion Espanola de Enfermedades Raras
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/federacion-espanola-de-enfermedades-raras/
Ver perfil >
Federation for Children with Special Needs
Teléfono: 617-236-7210 Correo electrónico: [email protected] Fax: 617-241-0330
https://rarediseases.org/es/organizations/federation-for-children-with-special-needs/
Ver perfil >
Feingold Center for Children
Teléfono: 781-466-9555 Correo electrónico: [email protected] Fax: 781-487-2361
https://rarediseases.org/es/organizations/feingold-center-for-children/
Ver perfil >
Ferguson Hospital
Teléfono: 616-356-4100
https://rarediseases.org/es/organizations/ferguson-hospital/
Ver perfil >
Fetal Alcohol Spectrum Disorders Center for Excellence
Correo electrónico: [email protected] Fax: 301-294-5401
https://rarediseases.org/es/organizations/fetal-alcohol-spectrum-disorders-center-for-excellence/
Ver perfil >
Fetal Hope Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hipoplasias pontocerebelosas, Síndrome de Potter, Spondylothoracic Dysplasia, ...
https://rarediseases.org/es/organizations/fetal-hope-foundation/
Ver perfil >
FH Foundation
Correo electrónico: [email protected] Fax: 626-628-2146
Enfermedades raras relacionadas: Hipercolesterolemia familiar
https://rarediseases.org/es/organizations/fh-foundation/
Ver perfil >
Fibrolamellar Cancer Foundation (FCF)
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Fibrolamellar Carcinoma
https://rarediseases.org/es/organizations/fibrolamellar-cancer-foundation-fcf/
Ver perfil >
Fibromuscular Dysplasia Society Of America (FMDSA)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Fibromuscular Dysplasia
https://rarediseases.org/es/organizations/fibromuscular-dysplasia-society-of-america-fmdsa/
Ver perfil >
Fibromyalgia Association UK
Teléfono: 844-887-2444 Correo electrónico: charity_fmauk.org Fax: 844-887-9033
https://rarediseases.org/es/organizations/fibromyalgia-association-uk/
Ver perfil >
Fight ALD
Teléfono: 760-212-5731 Correo electrónico: [email protected]
Enfermedades raras relacionadas: X-Linked Adrenoleukodystrophy
https://rarediseases.org/es/organizations/fight-ald/
Ver perfil >
Fight for Sight, Inc.
Teléfono: 212-679-6060 Correo electrónico: [email protected] Fax: 877-679-4466
https://rarediseases.org/es/organizations/fight-for-sight-inc/
Ver perfil >
Fight SMA/Spinal Muscular Atrophy
Teléfono: 703-299-1144 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Kugelberg Welander Syndrome, Werdnig-Hoffmann Disease
https://rarediseases.org/es/organizations/fight-sma-spinal-muscular-atrophy/
Ver perfil >
Fight the Flame
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/fight-the-flame/
Ver perfil >
Fighting For Kaiden Foundation, Inc.
Teléfono: 443-995-3002 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/fighting-for-kaiden-foundation-inc/
Ver perfil >
First Candle-SIDS Alliance
Teléfono: 443-640-1049 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Sudden Infant Death Syndrome
https://rarediseases.org/es/organizations/first-candle-sids-alliance/
Ver perfil >
Floating Harbor Syndrome Support Group
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Floating Harbor Syndrome
https://rarediseases.org/es/organizations/floating-harbor-syndrome-support-group/
Ver perfil >
flok Health
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Phenylketonuria
https://rarediseases.org/es/organizations/national-pku-news/
Ver perfil >
Fly Little Bird Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/fly-little-bird-foundation/
Ver perfil >
FND Hope
Enfermedades raras relacionadas: Trastorno neurológico funcional
https://rarediseases.org/es/organizations/fnd-hope/
Ver perfil >
FOCUS Families
Teléfono: 858-273-1473 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/focus-families/
Ver perfil >
Focus Foundation, Inc.
Teléfono: 443-223-7323 Correo electrónico: [email protected] Fax: 410-798-4801
Enfermedades raras relacionadas: Trisomía X (síndrome del triple X o 47, XXX), XYY Syndrome, Pentasomía X, ...
https://rarediseases.org/es/organizations/focus-foundation-inc/
Ver perfil >
Focus On Rhabdo
Teléfono: 818-554-6480 Correo electrónico: [email protected] Fax: 609-799-4321
Enfermedades raras relacionadas: Blastoma pleuropulmonar
https://rarediseases.org/es/organizations/focus-on-rhabdo/
Ver perfil >
FOD (Fatty Oxidation Disorders) Family Support Group
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/fod-fatty-oxidation-disorders-family-support-group-2/
Ver perfil >
FOD (Fatty Oxidation Disorders) Family Support Group
Teléfono: 517-381-1940 Correo electrónico: [email protected] Fax: 866-290-5206
Enfermedades raras relacionadas: Short Chain Acyl CoA Dehydrogenase Deficiency, Deficiencia de Carnitina-Acilcarnitina Translocasa (CACT), Carnitine Palmitoyltransferase 1A Deficiency, ...
https://rarediseases.org/es/organizations/fod-fatty-oxidation-disorders-family-support-group/
Ver perfil >
FOLKS: Friends of Landau Kleffner Syndrome
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Landau Kleffner Syndrome
https://rarediseases.org/es/organizations/folks-friends-of-landau-kleffner-syndrome/
Ver perfil >
Food Allergy Research & Education
Correo electrónico: [email protected] Fax: 703-691-2713
Enfermedades raras relacionadas: Síndrome de enterocolitis inducida por proteínas alimentarias
https://rarediseases.org/es/organizations/food-allergy-research-education/
Ver perfil >
Food and Drug Administration (FDA) Consumer Nutrition and Health Information
Teléfono: 301-575-0156
Enfermedades raras relacionadas: Brucellosis, Botulismo, Listeriosis ...
https://rarediseases.org/es/organizations/food-and-drug-administration-fda-consumer-nutrition-and-health-information/
Ver perfil >
Food and Drug Administration (FDA) Office of Orphan Products Development
Teléfono: 301-796-8660 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/food-and-drug-administration-fda-office-of-orphan-products-development/
Ver perfil >
FORCE: Facing Our Risk of Cancer Empowered
Teléfono: 954-827-2200 Correo electrónico: [email protected] Fax: 954-827-2200
Enfermedades raras relacionadas: Bannayan-Riley-Ruvalcaba Syndrome, Peutz-Jeghers Syndrome, Síndrome de cáncer hereditario de mama y/o de ovario, ...
https://rarediseases.org/es/organizations/force-facing-our-risk-of-cancer-empowered/
Ver perfil >
Foundation Building Strength for Nemaline Myopathy
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Congenital Myopathy, Miopatía nemalínica
https://rarediseases.org/es/organizations/foundation-building-strength-for-nemaline-myopathy/
Ver perfil >
Foundation Fighting Blindness
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Coroideremia, Amaurosis congénita de Leber, Retinitis Pigmentaria, ...
https://rarediseases.org/es/organizations/foundation-fighting-blindness/
Ver perfil >
Foundation Fighting Blindness (Canada)
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Amaurosis congénita de Leber, Retinitis Pigmentaria, Stickler Syndrome, ...
https://rarediseases.org/es/organizations/foundation-fighting-blindness-canada/
Ver perfil >
Foundation For A Cure For Mitochondrial Disease, Inc.
Teléfono: 203-699-0022 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Primary Mitochondrial Myopathies, Deficiencia de Timidina Quinasa 2
https://rarediseases.org/es/organizations/foundation-for-a-cure-for-mitochondrial-disease-inc/
Ver perfil >
Foundation for Angelman Syndrome Therapeutics (FAST)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Angelman
https://rarediseases.org/es/organizations/foundation-for-angelman-syndrome-therapeutics-fast/
Ver perfil >
Foundation for Condylar Resorption
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/foundation-for-condylar-resorption/
Ver perfil >
Foundation For Ichthyosis & Related Skin Types
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Keratitis Ichthyosis Deafness Syndrome, Síndrome de Netherton, Trastornos relacionados con GJB2, ...
https://rarediseases.org/es/organizations/foundation-for-ichthyosis-related-skin-types-first/
Ver perfil >
Foundation for Nager and Miller Syndromes
Correo electrónico: [email protected] Fax: 253-288-7679
Enfermedades raras relacionadas: Nager Syndrome, Miller Syndrome
https://rarediseases.org/es/organizations/foundation-for-nager-and-miller-syndromes/
Ver perfil >
Foundation for Peripheral Neuropathy
Teléfono: 847-883-9942 Correo electrónico: [email protected] Fax: 847-883-9960
Enfermedades raras relacionadas: Neuropatía motora multifocal, Hereditary Sensory and Autonomic Neuropathy Type 1E, Hereditary Neuralgic Amyotrophy, ...
https://rarediseases.org/es/organizations/foundation-for-peripheral-neuropathy/
Ver perfil >
Foundation For Prader-Willi Research (FPWR)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Prader-Willi
https://rarediseases.org/es/organizations/foundation-for-prader-willi-research-fpwr/
Ver perfil >
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