Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Canadian Society for Mucopolysaccharide and Related Diseases, Inc.


Address

#218-2055 Commercial Drive
Vancouver, BC V5N 0C7 Canada

Phone

(604) 924-5130

800 Number

1-800-667-1846

Email Address

info@mpssociety.ca

Description

The Canadian Society for Mucopolysaccharide and Related Diseases, Inc. (CSMRDI) is an international voluntary health organization based in Ontario. Founded in 1984, the society is dedicated to functioning as a parent support group; increasing public awareness of the mucopolysaccharidoses (MPS) and related diseases; and raising funds for further research into MPS. The mucopolysaccharidoses are a group of rare hereditary diseases of lysosomal storage. These disorders are characterized by the abnormal accumulation of mucopolysaccharides in various tissues of the body such as the central nervous system, respiratory system, cardiovascular system, liver, spleen, and/or other areas. Although symptoms and findings may vary depending upon the form of the disease present, affected children often have distinctive facial abnormalities, skeletal malformations, growth delays, and mental retardation. The Canadian Society for Mucopolysaccharide and Related Diseases works through provincial families to provide local support to families of children who have recently been diagnosed; holds conferences where families and professionals can exchange ideas and information; funds research on MPS disorders; and funds the purchase of equipment for medical research. The society publishes a regular newsletter and a variety of other educational materials.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.