Patient Organizations - Page 27 of 48 - National Organization for Rare Disorders

Lymphoedema Association of Australia

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/lymphoedema-association-of-australia/

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Lymphoedema Support Group – Tasmania

https://rarediseases.org/es/organizations/lymphoedema-support-group-tasmania/

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Lymphoma Action (UK)

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Primary Central Nervous System Lymphoma, Post-Transplant Lymphoproliferative Disease, Cutaneous T-Cell Lymphomas, ...

https://rarediseases.org/es/organizations/lymphoma-action-uk/

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Lymphoma Canada

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Post-Transplant Lymphoproliferative Disease, Cutaneous T-Cell Lymphomas, Mantle Cell Lymphoma, ...

https://rarediseases.org/es/organizations/lymphoma-canada/

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Lymphoma Research Foundation

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Primary Central Nervous System Lymphoma, Post-Transplant Lymphoproliferative Disease, Acute Myeloid Leukemia, ...

https://rarediseases.org/es/organizations/lymphoma-research-foundation/

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Lymphovenous Association of Ontario

Teléfono: 416-410-2250 Correo electrónico: [email protected] Fax: 416-236-7604

https://rarediseases.org/es/organizations/lymphovenous-association-of-ontario/

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Lynch Syndrome International

Teléfono: 707-689-5089 Correo electrónico: [email protected] Fax: 707-451-3224

Enfermedades raras relacionadas: Lynch Syndrome

https://rarediseases.org/es/organizations/lynch-syndrome-international/

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M-CM Network

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: PIK3CA-Related Overgrowth Spectrum, Megalencephaly-Capillary Malformation, Síndrome de sobrecrecimiento asociado al gen PIK3CA, ...

https://rarediseases.org/es/organizations/m-cm-network/

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M. D. Anderson Cancer Center Hereditary Colorectal Cancer Registry

Teléfono: 713-792-3245 Correo electrónico: [email protected] Fax: 713-745-1163

Enfermedades raras relacionadas: Familial Adenomatous Polyposis

https://rarediseases.org/es/organizations/m-d-anderson-cancer-center-hereditary-colorectal-cancer-registry/

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M.O.R.G.A.N. Project

Teléfono: 321-506-2707 Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/m-o-r-g-a-n-project/

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MAB Community Services

Teléfono: 617-738-5110 Correo electrónico: [email protected] Fax: 617-738-1247

https://rarediseases.org/es/organizations/mab-community-services/

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Mackenzie’s Mission

Enfermedades raras relacionadas: Amyloidosis

https://rarediseases.org/es/organizations/mackenzies-mission/

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Macular Disease Society

Teléfono: 126-435-0551 Correo electrónico: [email protected] Fax: 126-435-0558

Enfermedades raras relacionadas: Macular Degeneration

https://rarediseases.org/es/organizations/macular-disease-society/

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Maddie’s Spark Foundation Inc

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/maddies-spark-foundation-inc/

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Madison Institute of Medicine(No longer in business)

Teléfono: 608-827-2470 Correo electrónico: [email protected] Fax: 608-827-2444

https://rarediseases.org/es/organizations/madison-institute-of-medicineno-longer-in-business/

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Magazine for Families with Members Having Special Needs

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/magazine-for-families-with-members-having-special-needs/

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MAGIC Foundation

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Weaver Syndrome, Seckel Syndrome, Conradi Hünermann Syndrome, ...

https://rarediseases.org/es/organizations/magic-foundation/

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Mainstream, Inc.

Teléfono: 785-266-6422 Correo electrónico: [email protected] Fax: 785-266-2113

https://rarediseases.org/es/organizations/mainstream-inc/

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Make Early Diagnosis To Prevent Early Death

Teléfono: 801-581-3888 Correo electrónico: [email protected] Fax: 801-581-5402

https://rarediseases.org/es/organizations/make-early-diagnosis-to-prevent-early-death/

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Make-A-Wish Foundation of America

Teléfono: 602-279-9474 Correo electrónico: [email protected] Fax: 602-279-0855

https://rarediseases.org/es/organizations/make-a-wish-foundation-of-america/

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Mal de Débarquement Syndrome Foundation

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Mal de Debarquement, Enfermedad del desembarco

https://rarediseases.org/es/organizations/mal-de-debarquement-syndrome-foundation/

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Malan Syndrome Foundation

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Malan Syndrome, Síndrome de Malan

https://rarediseases.org/es/organizations/malan-syndrome-foundation/

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Malignant Hyperthermia Association of the United States

Teléfono: 607-674-7901 Correo electrónico: [email protected] Fax: 607-674-7910

Enfermedades raras relacionadas: Stuve-Wiedemann Syndrome, RYR1-Related Diseases, Schwartz Jampel Syndrome, ...

https://rarediseases.org/es/organizations/malignant-hyperthermia-association-of-the-united-states/

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Malignant Hyperthermia Investigation Unit

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Malignant Hyperthermia

https://rarediseases.org/es/organizations/malignant-hyperthermia-investigation-unit/

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Malro Fighters Foundation

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/malro-fighters-foundation/

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Manitoba Ankylosing Spondylitis Association

Teléfono: 204-256-5320 Correo electrónico: [email protected] Fax: 204-942-4894

https://rarediseases.org/es/organizations/manitoba-ankylosing-spondylitis-association/

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Mantle Cell Lymphoma Alliance Foundation

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/mantle-cell-lymphoma-alliance-foundation/

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Marbach-Schaaf Neurodevelopmental Syndrome Foundation, Inc.

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/marbach-schaaf-neurodevelopmental-syndrome-foundation-inc/

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Marc Apodaca Jr Children’s Glioma Cancer Foundation

Miembro NORD

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/marc-apodaca-jr-childrens-glioma-cancer-foundation/

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Marc Lustgarten Pancreatic Cancer Foundation (dba The Lustgarten Foundation)

Teléfono: 516-803-2304 Fax: 516-803-2303

https://rarediseases.org/es/organizations/marc-lustgarten-pancreatic-cancer-foundation-dba-the-lustgarten-foundation/

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March of Dimes

Enfermedades raras relacionadas: Alpha Thalassemia, Familial Partial Lipodystrophy, Neonatal Hemochromatosis, ...

https://rarediseases.org/es/organizations/march-of-dimes/

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Marinesco-Sjogren Syndrome Support Group

Teléfono: 805-499-7410 Correo electrónico: [email protected]

Enfermedades raras relacionadas: Marinesco-Sjögren Syndrome

https://rarediseases.org/es/organizations/marinesco-sjogren-syndrome-support-group/

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Mario Negri Institute for Pharmacological Research

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/mario-negri-institute-for-pharmacological-research/

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Marshall-Smith Syndrome Organization of the USA, Inc.

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Marshall-Smith Syndrome

https://rarediseases.org/es/organizations/marshall-smith-syndrome-organization-of-the-usa-inc/

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Massachusetts General Department of Anesthesiology

Teléfono: 617-726-3030

https://rarediseases.org/es/organizations/massachusetts-general-department-of-anesthesiology/

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Massachusetts General Hospital Neurofibromatosis Clinic

Teléfono: 617-724-7856 Correo electrónico: [email protected] Fax: 617-724-8769

Enfermedades raras relacionadas: Neurofibromatosis 1, Neurofibromatosis 1

https://rarediseases.org/es/organizations/massachusetts-general-hospital-neurofibromatosis-clinic/

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MASSE WORLD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Oculocutaneous Albinism

https://rarediseases.org/es/organizations/masse-world/

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Mastokids

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Mastocytosis

https://rarediseases.org/es/organizations/mastokids/

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Maternal Alloimmunization Foundation

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Hemolytic Disease of the Fetus and Newborn

https://rarediseases.org/es/organizations/maternal-alloimmunization-foundation/

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Maternal Pituitary Support

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/maternal-pituitary-support/

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Matheny School and Hospital

Teléfono: 908-234-0011 Correo electrónico: [email protected] Fax: 908-719-2137

https://rarediseases.org/es/organizations/matheny-school-and-hospital/

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Mathew Forbes Romer Foundation, Inc.

Teléfono: 561-477-0337 Correo electrónico: [email protected] Fax: 561-477-0077

https://rarediseases.org/es/organizations/mathew-forbes-romer-foundation-inc/

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Matrix Parent Network and Resource Center

Teléfono: 415-884-3535 Correo electrónico: [email protected] Fax: 415-884-3555

https://rarediseases.org/es/organizations/matrix-parent-network-and-resource-center/

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Matthew’s Friends

Teléfono: 134-283-6571 Correo electrónico: [email protected] Fax: 788-405-4811

Enfermedades raras relacionadas: Status Epilepticus

https://rarediseases.org/es/organizations/matthews-friends/

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Mayo Clinic Dept. of Anesthesiology

Teléfono: 507-284-2511 Fax: 507-284-0161

https://rarediseases.org/es/organizations/mayo-clinic-dept-of-anesthesiology/

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MBTPS1 Related Disorders Research Group

Enfermedades raras relacionadas: Spondyloepiphyseal Dysplasia, Kondo-Fu Type

https://rarediseases.org/es/organizations/mbtps1-related-disorders-research-group/

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MCT8-AHDS Foundation

Enfermedades raras relacionadas: MCT8-Specific Thyroid Hormone Cell Transporter Deficiency, Deficiencia del transportador de células de hormona tiroidea específica de MCT8

https://rarediseases.org/es/organizations/mct8-ahds-foundation/

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MD Support – The Eyes of the Macular Degeneration Community

Teléfono: 816-761-7080 Correo electrónico: [email protected] Fax: 816-761-7080

Enfermedades raras relacionadas: Coats Disease, Leber Hereditary Optic Neuropathy, Choroideremia, ...

https://rarediseases.org/es/organizations/md-support-the-eyes-of-the-macular-degeneration-community/

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MdDS Foundation

Correo electrónico: [email protected]

https://rarediseases.org/es/organizations/mdds-foundation/

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MdDS Foundation (Mal de Débarquement Syndrome)

Miembro NORD

Correo electrónico: [email protected]

Enfermedades raras relacionadas: Mal de Debarquement

https://rarediseases.org/es/organizations/mdds-foundation-mal-de-debarquement-syndrome/

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