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Home / Patient Organizations / Patient Organizations
LGMD2L Foundation
https://rarediseases.org/es/organizations/lgmd2l-foundation/
Ver perfil >
LHON Collective
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lhon-collective/
Ver perfil >
Li-Fraumeni Syndrome Association
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Li-Fraumeni
https://rarediseases.org/es/organizations/li-fraumeni-syndrome-association/
Ver perfil >
Li-Fraumeni Syndrome International Registry
Teléfono: 617-632-3000 Correo electrónico: [email protected] Fax: 617-632-3161
https://rarediseases.org/es/organizations/li-fraumeni-syndrome-international-registry/
Ver perfil >
Liam’s Land Organization, Inc
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/liams-land-organization-inc/
Ver perfil >
Lichen Sclerosus Support Network
Miembro NORD
Teléfono: 217-207-3291 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Lichen Planus, Lichen Sclerosus
https://rarediseases.org/es/organizations/lichen-sclerosus-support-network/
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Life Raft Group
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Tumor tenosinovial de células gigantes, Tumores del estroma gastrointestinal
https://rarediseases.org/es/organizations/life-raft-group/
Ver perfil >
Life’sWork
Teléfono: 412-471-2600 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lifeswork/
Ver perfil >
Lifetime Advocacy Plus
Teléfono: 206-367-8055 Correo electrónico: [email protected] Fax: 206-367-8353
https://rarediseases.org/es/organizations/lifetime-advocacy-plus/
Ver perfil >
Lighthouse International
Enfermedades raras relacionadas: Weill-Marchesani Syndrome, Aicardi Syndrome
https://rarediseases.org/es/organizations/lighthouse-international/
Ver perfil >
Lilabean Foundation for Pediatric Brain Cancer Research
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lilabean-foundation-for-pediatric-brain-cancer-research/
Ver perfil >
Lipodystrophy United
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Lipodistrofia generalizada congénita, lipodystrophy due to peptidic growth factors deficiency, Lipodistrofia adquirida, ...
https://rarediseases.org/es/organizations/lipodystrophy-united/
Ver perfil >
Lipodystrophy United
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lipodystrophy-united-2/
Ver perfil >
Lipoprotein a Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lipoprotein-a-foundation/
Ver perfil >
Little Hearts, Inc.
Teléfono: 860-635-0006 Correo electrónico: [email protected] Fax: 860-635-0006
Enfermedades raras relacionadas: Síndrome ADNP, Cor Triatriatum, PHACE Syndrome, ...
https://rarediseases.org/es/organizations/little-hearts-inc/
Ver perfil >
Little Miss Hannah Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/little-miss-hannah-foundation/
Ver perfil >
Little People of America, Inc.
Teléfono: 714-368-3689 Correo electrónico: [email protected] Fax: 714-368-3367
Enfermedades raras relacionadas: Asphyxiating Thoracic Dystrophy, Síndrome de Ellis-Van Creveld, Condrodisplasia punctata rizomélica, ...
https://rarediseases.org/es/organizations/little-people-of-america-inc/
Ver perfil >
Little People UK
Enfermedades raras relacionadas: Espectro osteólisis multicéntrica-nodulosis-artropatía
https://rarediseases.org/es/organizations/little-people-uk/
Ver perfil >
Liv4TheCure
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Wolf-Hirschhorn
https://rarediseases.org/es/organizations/liv4thecure/
Ver perfil >
Livestrong Foundation
Teléfono: 512-236-8820 Fax: 512-236-8482
Enfermedades raras relacionadas: Linfoma gástrico primario, Glioblastoma, Glioma, ...
https://rarediseases.org/es/organizations/livestrong-foundation/
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Living Bank International
Teléfono: 713-961-9431 Correo electrónico: [email protected] Fax: 713-961-0979
https://rarediseases.org/es/organizations/living-bank-international/
Ver perfil >
Living Beyond Breast Cancer
Teléfono: 610-645-4567 Fax: 610-645-4573
Enfermedades raras relacionadas: Síndrome de cáncer hereditario de mama y/o de ovario
https://rarediseases.org/es/organizations/living-beyond-breast-cancer/
Ver perfil >
Living Resources
Teléfono: 518-218-0000 Fax: 518-862-2175
https://rarediseases.org/es/organizations/living-resources/
Ver perfil >
Living With XXY
Teléfono: 619-993-3812 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Klinefelter (47,XXY) y otras variantes
https://rarediseases.org/es/organizations/living-with-xxy/
Ver perfil >
Locks of Love
Teléfono: 561-833-7332 Correo electrónico: [email protected] Fax: 561-833-7962
Enfermedades raras relacionadas: Monilethrix, Graft versus Host Disease, Trichotillomania, ...
https://rarediseases.org/es/organizations/locks-of-love/
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Loeys-Dietz Syndrome Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Loeys-Dietz
https://rarediseases.org/es/organizations/loey-dietz-syndrome-foundation/
Ver perfil >
Lowe Syndrome Association, Inc.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome oculocerebrorrenal
https://rarediseases.org/es/organizations/lowe-syndrome-association-inc/
Ver perfil >
Lung Association
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Pediatric Non-Small Cell Lung Cancer, Cáncer de pulmón de células pequeñas
https://rarediseases.org/es/organizations/lung-association/
Ver perfil >
Lung Cancer Alliance
Teléfono: 202-463-2080 Correo electrónico: [email protected] Fax: 202-463-7497
Enfermedades raras relacionadas: Pediatric Non-Small Cell Lung Cancer, Cáncer de pulmón de células pequeñas
https://rarediseases.org/es/organizations/lung-cancer-alliance/
Ver perfil >
Lung Foundation Australia
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lung-foundation-australia/
Ver perfil >
Lung Transplant Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Idiopathic Pulmonary Fibrosis, Fibrosis quística
https://rarediseases.org/es/organizations/lung-transplant-foundation/
Ver perfil >
Lungevity Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lungevity-foundation/
Ver perfil >
Lupus and Allied Diseases Association, Inc.
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lupus-and-allied-diseases-association-inc/
Ver perfil >
Lupus Canada
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Neonatal Lupus, Lupus
https://rarediseases.org/es/organizations/lupus-canada/
Ver perfil >
Lupus Foundation of America, Inc.
Teléfono: 202-349-1155 Correo electrónico: [email protected] Fax: 202-349-1156
Enfermedades raras relacionadas: Asherson’s Syndrome, Enfermedad Mixta del Tejido Conectivo, Neonatal Lupus, ...
https://rarediseases.org/es/organizations/lupus-foundation-of-america-inc/
Ver perfil >
Lupus Research Alliance
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lupus-research-alliance/
Ver perfil >
Lupus Society of Alberta
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Scleroderma, Lupus, Sjögren Syndrome ...
https://rarediseases.org/es/organizations/lupus-society-of-alberta/
Ver perfil >
Lupus UK
Teléfono: 170-873-1251 Correo electrónico: [email protected] Fax: 170-873-1252
https://rarediseases.org/es/organizations/lupus-uk/
Ver perfil >
LymeDisease.org
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lymedisease-org/
Ver perfil >
Lymphatic Education & Research Network
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Diffuse Pulmonary Lymphangiomatosis, Congenital Pulmonary Lymphangiectasia, Gorham-Stout Disease, ...
https://rarediseases.org/es/organizations/lymphatic-education-research-network/
Ver perfil >
Lymphatic Malformation Institute
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Diffuse Pulmonary Lymphangiomatosis, Gorham-Stout Disease, Lymphangioleiomyomatosis ...
https://rarediseases.org/es/organizations/lymphatic-malformation-institute/
Ver perfil >
Lymphatic Malformations Alliance (prev LGDA)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Diffuse Pulmonary Lymphangiomatosis, Gorham-Stout Disease, Lymphatic Malformations ...
https://rarediseases.org/es/organizations/lymphangiomatosis-gorhams-disease-alliance-lgda/
Ver perfil >
Lymphedema Clinic Wittlinger Therapy Center
Teléfono: 435-374-5245 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lymphedema-clinic-wittlinger-therapy-center/
Ver perfil >
Lymphedema Education & Awareness Project
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lymphedema-education-awareness-project/
Ver perfil >
Lymphoedema Association of Australia
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/lymphoedema-association-of-australia/
Ver perfil >
Lymphoedema Support Group – Tasmania
https://rarediseases.org/es/organizations/lymphoedema-support-group-tasmania/
Ver perfil >
Lymphoma Action (UK)
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Linfoma gástrico primario, Linfoma de células del manto, Enfermedad Linfoproliferativa Post-Trasplante (TLPT), ...
https://rarediseases.org/es/organizations/lymphoma-action-uk/
Ver perfil >
Lymphoma Canada
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Linfoma gástrico primario, Linfoma de células del manto, Enfermedad Linfoproliferativa Post-Trasplante (TLPT), ...
https://rarediseases.org/es/organizations/lymphoma-canada/
Ver perfil >
Lymphoma Research Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Linfoma gástrico primario, Linfoma de células del manto, Enfermedad Linfoproliferativa Post-Trasplante (TLPT), ...
https://rarediseases.org/es/organizations/lymphoma-research-foundation/
Ver perfil >
Lymphovenous Association of Ontario
Teléfono: 416-410-2250 Correo electrónico: [email protected] Fax: 416-236-7604
https://rarediseases.org/es/organizations/lymphovenous-association-of-ontario/
Ver perfil >
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