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Vaincre Les Maladies Lysosomales
2 Ter Avenue
Massy, 91300 France
Description The Vaincre Les Maladies Lysosomales (VLML) is a voluntary, non-profit organization in France dedicated to providing information and support to individuals with lysosomal disorders and their families; improving the quality of life of affected individuals; and promoting and supporting research for these disorders (e.g., Pompe disease, the lipidoses, mucolipidoses, mucopolysaccharidoses, and glycoproteinoses). Established in 1990, Vaincre Les Maladies Lysosomales provides referrals to appropriate support groups; promotes public awareness campaigns; and offers informational conferences and weekend retreats for affected individuals, families, and healthcare professionals. Vaincre Les Maladies Lysosomales also offers a variety of educational materials to affected individuals, family members, and health care professionals including regular newsletters, brochures, books, and videos.