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Home / Patient Organizations / Patient Organizations
IndoUSRare
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/indousrare-2/
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Infant Botulism Treatment and Prevention Program
Teléfono: 510-231-7600 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Botulismo
https://rarediseases.org/es/organizations/infant-botulism-treatment-and-prevention-program/
Ver perfil >
Infants Remembered In Silence, Inc. (IRIS)
Teléfono: 507-334-4748 Correo electrónico: [email protected] Fax: 507-334-4748
Enfermedades raras relacionadas: Síndrome de Potter, Anencephaly, Sudden Infant Death Syndrome, ...
https://rarediseases.org/es/organizations/infants-remembered-in-silence-inc-iris/
Ver perfil >
Infectious Diseases Society of America
Teléfono: 703-299-0200 Correo electrónico: [email protected] Fax: 703-299-0204
Enfermedades raras relacionadas: Mionecrosis Clostridial, Mucormicosis
https://rarediseases.org/es/organizations/infectious-diseases-society-of-america/
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Inflammatory Breast Cancer Research Foundation
Correo electrónico: [email protected] Fax: 801-751-8922
https://rarediseases.org/es/organizations/inflammatory-breast-cancer-research-foundation/
Ver perfil >
Infogen AC
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/infogen-ac/
Ver perfil >
Information for Genetic Professionals
Teléfono: 913-588-6043 Correo electrónico: [email protected] Fax: 913-588-4060
https://rarediseases.org/es/organizations/information-for-genetic-professionals/
Ver perfil >
Institute for Human Services/Helpline
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/institute-for-human-services-helpline/
Ver perfil >
Institute of Reconstructive Plastic Surgery (New York Medical University)
Teléfono: 212-263-5834 Correo electrónico: [email protected] Fax: 212-263-5400
Enfermedades raras relacionadas: Carpenter Syndrome
https://rarediseases.org/es/organizations/institute-of-reconstructive-plastic-surgery-new-york-medical-university/
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Intensive Caring Unlimited, Inc.
Teléfono: 610-876-7872
https://rarediseases.org/es/organizations/intensive-caring-unlimited-inc/
Ver perfil >
InterConnect Support Group
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/interconnect-support-group/
Ver perfil >
International 22q11.2 Deletion Syndrome Foundation, Inc.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Complete DiGeorge Syndrome, Atimia congénita, Síndrome de deleción del cromosoma 22q11.2 ...
https://rarediseases.org/es/organizations/international-22q11-2-deletion-syndrome-foundation-inc/
Ver perfil >
International Academy for the Brain
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/international-academy-for-the-brain/
Ver perfil >
International Alliance of ALS/MND Associations
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Primary Lateral Sclerosis, Esclerosis lateral amiotrófica
https://rarediseases.org/es/organizations/international-alliance-of-als-mnd-associations/
Ver perfil >
International Alliance of Patients’ Organizations
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/international-alliance-of-patients-organizations/
Ver perfil >
International Association for Medical Assistance to Travellers
Teléfono: 716-754-4883 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/international-association-for-medical-assistance-to-travellers/
Ver perfil >
International Association for the Study of Pain
Teléfono: 202-524-5300 Correo electrónico: [email protected] Fax: 202-524-5301
Enfermedades raras relacionadas: Central Pain Syndrome
https://rarediseases.org/es/organizations/international-association-for-the-study-of-pain/
Ver perfil >
International Autoimmune Encephalitis Society (IAES)
Miembro NORD
Teléfono: 352-527-2470 Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/international-autoimmune-encephalitis-society-iaes/
Ver perfil >
International Brain Tumour Alliance
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/international-brain-tumour-alliance/
Ver perfil >
International Bureau for Epilepsy
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/international-bureau-for-epilepsy/
Ver perfil >
International Cancer Alliance for Research and Education (ICARE)
Teléfono: 301-656-3461 Correo electrónico: [email protected] Fax: 301-654-8684
Enfermedades raras relacionadas: Cáncer de uraco, Linfoma de células del manto, Linfoma folicular, ...
https://rarediseases.org/es/organizations/international-cancer-alliance-for-research-and-education-icare/
Ver perfil >
International Center for Disability Resources on the Internet
Teléfono: 919-349-6661 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Lesch Nyhan Syndrome
https://rarediseases.org/es/organizations/international-center-for-disability-resources-on-the-internet/
Ver perfil >
International Center for Fabry Disease
Teléfono: 212-659-6700 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Fabry Disease
https://rarediseases.org/es/organizations/international-center-for-fabry-disease/
Ver perfil >
International Children’s Anophthalmia Network (ICAN)
Teléfono: 215-456-8722 Correo electrónico: [email protected] Fax: 215-456-2356
Enfermedades raras relacionadas: Schwartz Jampel Syndrome, Lenz Microphthalmia Syndrome, Oculocerebrocutaneous Syndrome ...
https://rarediseases.org/es/organizations/international-childrens-anophthalmia-network-ican/
Ver perfil >
International Costello Syndrome Support Group
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Costello Syndrome
https://rarediseases.org/es/organizations/international-costello-syndrome-support-group/
Ver perfil >
International Cystinuria Foundation
Teléfono: 970-204-0031 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Cystinuria
https://rarediseases.org/es/organizations/international-cystinuria-foundation/
Ver perfil >
International Diabetes Federation
Teléfono: 322-538-5511 Correo electrónico: [email protected] Fax: 322-538-5114
https://rarediseases.org/es/organizations/international-diabetes-federation/
Ver perfil >
International Dyslexia Association
Teléfono: 410-296-0232 Correo electrónico: [email protected] Fax: 410-321-5069
Enfermedades raras relacionadas: Trisomía X (síndrome del triple X o 47, XXX)
https://rarediseases.org/es/organizations/international-dyslexia-association/
Ver perfil >
International EB Awareness Week
https://rarediseases.org/es/organizations/international-eb-awareness-week/
Ver perfil >
International Eosinophil Society, Inc
Teléfono: 414-276-6445 Fax: 414-276-3349
https://rarediseases.org/es/organizations/international-eosinophil-society-inc/
Ver perfil >
International Essential Tremor Foundation
Teléfono: 913-341-3880 Correo electrónico: [email protected] Fax: 913-341-1296
Enfermedades raras relacionadas: Essential Tremor
https://rarediseases.org/es/organizations/international-essential-tremor-foundation/
Ver perfil >
International Fanconi Anemia Registry
Teléfono: 212-327-8000 Correo electrónico: [email protected] Fax: 212-327-7974
Enfermedades raras relacionadas: Anemia de Fanconi
https://rarediseases.org/es/organizations/international-fanconi-anemia-registry/
Ver perfil >
International Federation for Spina Bifida and Hydrocephalus
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Tethered Cord Syndrome, Spina Bifida, Hydrocephalus, ...
https://rarediseases.org/es/organizations/international-federation-for-spina-bifida-and-hydrocephalus/
Ver perfil >
International FH Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hipercolesterolemia familiar
https://rarediseases.org/es/organizations/international-fh-foundation/
Ver perfil >
International Fibrodysplasia Ossificans Progressiva Association
https://rarediseases.org/es/organizations/international-fibrodysplasia-ossificans-progressiva-association/
Ver perfil >
International FOP Association (IFOPA)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Fibrodisplasia osificante progresiva
https://rarediseases.org/es/organizations/international-fop-association-ifopa/
Ver perfil >
International Foundation for Autoimmune Arthritis
Teléfono: 877-609-4226 Correo electrónico: [email protected] Fax: 877-609-4226
https://rarediseases.org/es/organizations/international-foundation-for-autoimmune-arthritis/
Ver perfil >
International Foundation for CDKL5 Research (IFCR)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: CDKL5 Deficiency Disorder
https://rarediseases.org/es/organizations/international-foundation-for-cdkl5-research-ifcr/
Ver perfil >
International Foundation for Gastrointestinal Disorders (IFFGD)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Pediatric Crohn’s Disease, Síndrome de la arteria mesentérica superior, Síndrome de Vómitos Cíclicos, ...
https://rarediseases.org/es/organizations/international-foundation-for-gastrointestinal-disorders-iffgd/
Ver perfil >
International Foundation for Optic Nerve Disease (IFOND)
Teléfono: 845-534-7250 Correo electrónico: [email protected] Fax: 845-534-7250
Enfermedades raras relacionadas: Leber Hereditary Optic Neuropathy, Primary Mitochondrial Disorders
https://rarediseases.org/es/organizations/international-foundation-for-optic-nerve-disease-ifond/
Ver perfil >
International FOXG1 Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/international-foxg1-foundation/
Ver perfil >
International FOXP1 Foundation
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/international-foxp1-foundation/
Ver perfil >
International FPIES Association
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de enterocolitis inducida por proteínas alimentarias
https://rarediseases.org/es/organizations/international-fpies-association/
Ver perfil >
International Glaucoma Association
Correo electrónico: [email protected] Fax: 123-364-8179
Enfermedades raras relacionadas: Weill-Marchesani Syndrome
https://rarediseases.org/es/organizations/international-glaucoma-association/
Ver perfil >
International Hearing Dog, Inc.
Teléfono: 303-287-3277 Correo electrónico: [email protected] Fax: 303-287-3425
https://rarediseases.org/es/organizations/international-hearing-dog-inc/
Ver perfil >
International Hearing Society
Teléfono: 734-522-7200 Correo electrónico: [email protected] Fax: 734-522-0200
https://rarediseases.org/es/organizations/international-hearing-society/
Ver perfil >
International Heart Spasms Alliance
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/international-heart-spasms-alliance/
Ver perfil >
International Hip Dysplasia Institute
Teléfono: 321-843-5271 Fax: 321-843-5298
https://rarediseases.org/es/organizations/international-hip-dysplasia-institute/
Ver perfil >
International Huntington Association
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Huntington’s Disease
https://rarediseases.org/es/organizations/international-huntington-association/
Ver perfil >
International Hydranencephaly Support Group
Teléfono: 604-459-8691 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hydranencephaly, Hydrocephalus
https://rarediseases.org/es/organizations/international-hydranencephaly-support-group/
Ver perfil >
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